Depression and Related Affective Disorders Association (DRADA) Meyer 3-181, 600 North Wolfe Street Baltimore, MD 21287-7381 Phone: (410) 955-4647
The Child and Adolescent Bipolar Foundation (CABF) ll87 Wilmette Avenue, #33l Wilmette, IL 6009l Phone: (847) 256-8525 Fax: (847) 920-9310 Email:email@example.com
A parent-led group providing education, support, and advocacy for children, adolescents, families and professionals.
Federation of Families for Children’s Mental Health 1021 Prince Street Alexandria, VA 22314-2971 Phone: (703) 684-7710 Fax: (703) 836-1040 Email:firstname.lastname@example.org
A group for families, especially low-income families, who are caring for a child with a mental illness.
National Alliance for the Mentally Ill (NAMI) Colonial Place Three 2107 Wilson Blvd. – Suite 300 Arlington, VA 22201-3042 Phone: (703) 524-7600 or (800) 950-NAMI (Helpline) Fax: (703) 524-9094 TDD: (703) 516-7227
NAMI is the largest organization for mentally ill people and their families in the US. It has state and local chapters around the country, sponsors legislation, advocates for mentally ill people, and provides excellent information via its web site and publications.
National Depressive and Manic-Depressive Association 730 N. Franklin Street, Suite 501 Chicago, IL 60610-3526 Phone: (312) 642-0049 or (800) 826-3632 FREE Fax: (312) 642-7243
This support and advocacy group specifically for people with depression or bipolar depression has chapters throughout the US and an informative web site.
Mood Disorders Association of British Columbia 2730 Commercial Drive, #201 Vancouver, BC
Canada V5N 5PN Phone: (604) 873-0103 Fax: (604) 873-3095 Email: email@example.com
Glasgow Association for Mental Health Melrose House, First Floor
15/23 Cadogan Street Glasgow, G2 6QQ Phone: (0141) 204 2270 Fax: (0141) 204 2770 Email: GAMH@colloquium.co.uk
Manic Depression Fellowship 8-10 High Street
Kingston-upon-Thames Surrey KT1 1EY UK Phone: (0181) 974 6550 Email: firstname.lastname@example.org
This organization has regional offices in Wales, Greater London, and Manchester, as well as 125 local groups throughout the UK. It provides support, advice, and information for people with manic depression, their families, friends, and carers.
Mental Health Foundation 20/21 Cornwall Terrace
London NW1 4QL Phone: 0207 535 7400 Fax: 0207 535 7474 Email: email@example.com
National Alliance of the Relatives of the Mentally Ill (NARMI) Tydehams Oaks Tydehams, Newbury
Berks RG14 6JT Phone: (01635) 551923
National Disability Council Caxton House, Level 4A Tothill Street London SW1H 9NA Phone: 0207 273 5636 Fax: 0207 273 5929
Minicom: 0207 273 5645 Email: firstname.lastname@example.org
Northern Ireland Association for Mental Health Beacon House 80 University Street Belfast BT7 1HE Phone: 028 9032 8474
Fax: 028 9023 4940
SANE 1st Floor, Cityside House 40 Adler Street London E1 1EE Phone: (0171) 724 6520 (office) National Helpline: 0345 67 8000 (daily 2:00 pm to midnight)
SANE is a mental health charity which campaigns to improve attitudes and services for sufferers and their families.
UK Advocacy Network Volserve House 14-18 West Bar Green Sheffield S1 2DA Phone: (0114) 272 8171
Young Minds 102-108 Clerkenwell Road, 2nd Floor London EC1M 5SA
Phone: (0171) 336 8445 (office) or (0800) 018 2138 FREE (Parents Hotline) Fax: (0171) 336 8446 Email: email@example.com
AWARE 147 Phipsborough Road Dublin 7 Ireland
Phone: (01) 830 8449 or (0) 679 1711 (Helpline)
AWARE offers help by phone, sponsors support groups in 38 locations around Ireland, provides information and literature, does public advocacy, and supports research.
Action Resource Network Inc. 266 Johnston Street Abbotsford, Victoria 3067 Phone: (03) 9416-3488 or (800) 808-126 Fax: (03) 9416-3484 TTY: (03) 9416-3491
Association of Relatives and Friends of the Mentally Ill (ARAFMI)
c/o Mental Health Resource Centre 1 Richmond Road Keswick, SA 5035 Phone: (08) 8221 5166 Fax: (08) 8221 5159
ARAFMI has chapters in most Australian states.
62 Henley Beach Road Mile End, SA 5031 Phone: (08) 8352 8599 or 1(800) 805 495 Fax: (08) 8354 0049 TTY: (08) 8352 8022 Email:firstname.lastname@example.org Contact: Brad or Jen
Mood Disorders Association (SA) Inc./Self-Help (MDP) Inc.
MHRC Building, 1 Richmond Road Keswick, SA 5035 Phone: (08) 8221-5170 Fax: (08) 8221-5159
MDA offers education and support services to those who may be suffering from depression and manic depression.
SANE Australia PO Box 226 South Melbourne, Victoria 3065
Phone: (61) 3 9682 5933 Fax: (61) 3 9682 5944 Email: email@example.com
Richmond Fellowship 249 Madras Street, Level 3 Christchurch, NZ
Phone: (64) 3 365-3211 Fax: (64) 3 365-3905 Email: firstname.lastname@example.org
“Books and Publications”
Berger, Diane, et al. We Heard the Angels of Madness: A Family Guide to Coping with Manic Depression. New York: Quill, 1992.
Bipolar Disorders Letter
This is an online newsletter, mostly for professionals but of interest to parents as well. It summarizes recent studies on treatments. You’ll need the free program Acrobat Reader to look at it.
Bipolar Network News (newsletter). Stanley Foundation Bipolar Network, Bethesda, Maryland.
Fieve, Ronald R. Moodswing: Dr. Fieve on Depression (revised edition). New York: Bantam Books, 1997.
Guiness, David. Inside Out: A Guide to Self-Management of Manic Depression (booklet). The Manic Depression Fellowship (UK), 1998.
Halebsky, Mark. Surviving the Crisis of Depression and Bipolar Illness: Layperson’s Guide to Coping with Mental Illness Beyond the Time of Crisis and Outside the Hospital. Arvada, Colorado: Personal and Professional Growth Organization, 1997.
Jamison, Kay Redfield. An Unquiet Mind. New York: Random House, 1997. Dr. Jamison is one of the most prominent experts on bipolar disorders–and is herself a manic-depressive. This is her fascinating (and for worried parents, heartening) memoir.
Jamison, Kay Redfield. Touched with Fire: Manic-Depressive Illness and the Artistic Temperament. New York: Free Press, 1996.
Walsh, Mitzi. Bipolar Disorders: A Guide to Helping Children and Adolescents. Sebastopol: O’Reilly, 1999. A comprehensive book for parents that covers diagnosis, family life, medications, talk therapies and other interventions, insurance, and school. The book from which these resources are taken.
For parents and caregivers of bipolar children and teens. Substantial excerpts from the the book Bipolar Disorders by Mitzi Walsh and other news and content.
This parent-run page features lots of supportive information and personal stories, including an incomplete list of support groups in the US and Canada for parents of children with mental illness, and links to an AOL chat room and several mailing lists.
This fabulous list for parents of bipolar children and teens is moderated by parent volunteers, and sponsored through the generosity of Active-Websites, owned by Steve Worden. It’s an excellent source of support and reliable information. To subscribe, see the requirements at their web site.
A collection of articles, links, and a Web chat group about bipolar disorders.
For parents, spouses, siblings, and friends of people with bipolar disorder. To subscribe, send email, and in the body of the message, write: subscribe bpso.
Information about bipolar disorders, and links to support and advocacy groups in Australia and elsewhere. There’s also a FyrenIyce email list.
Volunteer run organization that offers peer to peer support for people with bipolar disorder and those that care about them.
www.mgh.harvard.edu/” target=”_blank” rel=”nofollow”>Massachusetts General Hospital Neurology Forums
This site features discussion groups (live and bulletin board style) on almost every known neurological disorder, including bipolar disorders.
Home of the Bipolar FAQ (frequently asked questions list).
You can find up-to-date information on bipolar disorders here, with a strong mental health consumer orientation.
WalkersWeb is the home of several mailing lists geared toward people with bipolar disorders or depression. It also has excellent links to mental health sites, its own informational files, and online chat groups.
“Related Conditions and Symptoms”
If your child has multiple diagnoses or simply shares symptoms with another condition, these books and online resources may help.
Hallowell, Edward. When You Worry About the Child You Love: Emotional and Learning Problems in Children. New York: Simon & Schuster, 1996. This book provides a good introduction to the whole spectrum of psychiatric, emotional, developmental, and learning disorders in young children. It’s very readable.
Hallowell, Edward. Driven to Distraction: Recognizing and Coping with Attention Deficit Disorder from Childhood Through Adulthood. Reading, Massachusetts: Addison-Wesley, 1994. The classic book on ADD/ADHD.
Hallowell, Edward, and John Ratey. Answers to Distraction. New York: Bantam Books, 1996. A companion to Dr. Hallowell’s Driven to Distraction, this book provides behavior management and learning strategies to help the ADD/ADHD child.
This web site includes a parent message board, information, and links about conduct disorders, ODD, and related problems.
Most services are limited to Australia, but does contain a comprehensive list of related links, books and FAQ’s.
This site includes links to US and Canadian support and informational sites on anorexia and bulimia.
Eating Disorders Association Wenson House, 1st Floor 103 Prince of Wales Road Norwich NR1 1DW UK Phone: (0160) 362-1414
Seasonal affective disorder
Rosenthal, Norman E., MD. Winter Blues. New York: The Guilford Press, 1993.
National Organization for Seasonal Affective Disorder (NOSAD) PO Box 40190 Washington, DC 20016 Phone: (301) 762-0768
Environmental Health and Light Research Institute 16057 Tampa Palms Boulevard, Suite 227 Tampa, FL 33647 Phone: (800) 544-4878 FREE
Light system vendors:
Apollo Light Systems Inc. 352 West 1060 South
Orem, UT 84058 Phone: (801) 226-2370
Hughes Lighting Technologies 34 Yacht Club Drive Lake Hopatcong, NJ 07849 Phone: (973) 663-1214 or (800) 544-4825 FREE Fax: (973) 663-3496
19217 Orbit Drive Gaithersburg, MD 20870 Phone: (301) 869-5980 or (800) 548-3968 FREE Email: email@example.com
Self-injurious behavior (SIB)
Strong, Marilee. A Bright Red Scream: Self-Mutilation and the Language of Pain. New York: Viking Press, 1998.
Levenkron, Steven. Cutting: Understanding and Overcoming Self-Mutilation. New York: W. W. Norton & Company, 1998.
Alderman, Tracy. The Scarred Soul: Understanding and Ending Self-Inflicted Violence. Oakland, California: New Harbinger Publications, 1997.
Bodies-Under-Siege is an online support group for people with self-injurious behavior. May not be appropriate for all teens with SIB, but some may find this therapeutic. To subscribe, send email, and in the body of the message, write: subscribe bus.
Secret Shame is a web site about self-injury, offering information and support to people with SIB and their families.
The National Alliance for the Mentally Ill Phone: (703) 524-7600
NAMI is the largest support group for people with mental illness in the US. Its national information line or web site can help you find local resources right away.
National Suicide Prevention Hotline (US) Phone: (800) 999-9999 FREE
Call this number to get information about the closest suicide prevention hotline.
SEIC maintains a list of suicide prevention hotlines and services in the US and Canada.
The Befrienders maintain a list of crisis and suicide counseling centers throughout the world.
Includes links to AA, NA, and many other groups that can help young people stop using drugs and alcohol.
Canadian Centre on Substance Abuse 75 Albert Street, Suite 300 Ottawa, ON K1P 5E7 Canada Phone: (613) 235-4048 Fax: (613) 235-8101
Drugline Ltd. 9A Brockley Cross
Brockley, London SE4 2AB UK Phone: (0181) 692-4975
Bending the Rules: A Guide for Parents of Troubled Children. Michael McDonald Productions, 1996. Made by the Southern California chapter of the Tourette Syndrome Association, this is an excellent video on handling problem behaviors that are driven by brain dysfunction. It comes highly recommended by parents. Call (818) 881-3211 to order.
Bruun, Ruth Dowling, MD, et al. Problem Behaviors and Tourette’s Syndrome (pamphlet). Bayside, New York: Tourette Syndrome Association, 1993. Contact information: 42-40 Bell Boulevard, Bayside, NY 11361-2820, (718) 224-2999.
Budman, Cathy, MD, and Ruth Dowling Bruun, MD. Tourette Syndrome and Repeated Anger Generated Episodes (RAGE) (pamphlet). Bayside, New York: Tourette Syndrome Association, 1998.
Greene, Ross. The Explosive Child: A New Approach for Understanding and Parenting Easily Frustrated, “Chronically Inflexible” Children. New York: HarperCollins, 1998. The title says it all: This may be the best book ever on raising a child with bipolar disorder, or even just a “difficult” temperament. Full of parent-tested strategies for defusing behavior problems.
Greenspan, Stanley I., with Jacqueline Salmon. The Challenging Child. Reading, Massachusetts: Addison-Wesley, 1995. Dr. Greenspan explains why some kids have a “challenging” temperament, and offers excellent ideas for turning down the volume of outbursts, anxiety, and other behavior problems.
Greenspan, Stanley I., with Jacqueline Salmon. Playground Politics: Understanding the Emotional Life of Your School-Age Child. Reading, Massachusetts: Addison-Wesley, 1993. Help for parents with children who don’t fit in.
Greenspan, Stanley I., and Serena Wieder, with Robin Simons. The Child with Special Needs. Reading, Massachusetts: Addison-Wesley, 1998. This book concentrates on working with developmentally or emotionally challenged children from infancy through school age. Highly recommended, especially if your child has an additional diagnosis of PDD/autism, ADHD, etc.
Kurcinka, Mary Sheedy. Raising Your Spirited Child. New York: HarperPerennial, 1991. Covers handling sensory defensiveness and other contributors to “spirited” behavior.
Marsh, Diane T., Rex M. Dickens, and E. Fuller Torrey. How to Cope with Mental Illness in Your Family: A Self-Care Guide for Siblings, Offspring, and Parents. New York: Putnam Publishing Group, 1998.
Meyer, Donald, editor. Uncommon Fathers: Reflections on Raising a Child with a Disability. Rockville, Maryland: Woodbine House, 1995.
Naseef, Robert A. Special Children, Challenged Parents: The Struggles and Rewards of Raising a Child with a Disability. New York: Birch Lane Press, 1997.
Phelan, Thomas W. 1-2-3 Magic: Effective Discipline for Children 2-12. Glen Ellyn, Illinois: Child Management Inc., 1996. Phelan has devised a workable system for managing behavior without getting physical, especially for strong-willed kids. Many parents swear by it. Also available on tape.
Wollis, Rebecca, and Agnes Hatfield. When Someone You Love Has a Mental Illness: A Handbook for Family, Friends, and Caregivers. Los Angeles: J. P. Tarcher, 1992.
Meyer, Donald, and Patricia Vadasy. Living with a Brother or Sister with Special Needs. Seattle: University of Washington Press, 1996.
Meyer, Donald, editor. Views from Our Shoes: Growing up with a Brother or Sister with Special Needs. Rockville, Maryland: Woodbine House, 1997.
A web site for kids who have a sibling with a disability.
SibShops/Sibling Support Project Children’s Hospital and Medical Center PO Box 5371, CL-09 Seattle, WA 98105 Phone: (206) 368-4911 Fax: (206) 368-4816
SibShops are special support groups for children dealing with a sibling’s disability. This site provides information on SibShops and related topics, and can help you find a SibShop program in your area.
Anderson, Winifred, Stephen Chitwood, and Dierdre Hayden. Negotiating the Special Education Maze: A Guide for Parents and Teachers, 2nd ed. Rockville, Maryland: Woodbine House, 1990. Well-written and very complete. A new edition with information on the changes wrought in IDEA 97 was said to be in production at press time.
Cutler, Barbara Coyne. You, Your Child, and “Special” Education: A Guide to Making the System Work. Baltimore: Paul H. Brookes Publishing, 1993. A guide to fighting the system on your child’s behalf.
Dornbush, Marilyn P., and Sheryl K. Pruitt. Teaching the Tiger: A Handbook for Individuals Involved in the Education of Students With Attention Deficit Disorders, Tourette Syndrome, or Obsessive Compulsive Disorder. Duarte, California: Hope Press, 1995. This is a wonderful book, full of practical suggestions, organizing aids, and ideas for teachers, parents, and students. Very applicable to children with bipolar disorders, with or without ADD/ADHD.
Maintained by the mother of neurologically challenged children, this site is an all-purpose guide to advocating for your child’s educational rights in the US. Information-rich, with great links and lots of inspiration.
This is the place to find the actual text of special education laws, information on the latest court battles, and answers to your special education questions.
US information and links on special education law, assistive technology, and related topics.
“Healthcare and Insurance”
Beckett, Julie. Health Care Financing: A Guide for Families. To order, contact: the National Maternal and Child Health Resource Center, Law Building, University of Iowa, Iowa City, IA 52242, (319) 335-9073. This overview of the healthcare financing system includes advocacy strategies for families, and information about public health insurance in the US.
How to Get Quality Care for a Child with Special Health Needs: A Guide to Health Services and How to Pay for Them. To order, contact: The Disability Bookshop, PO Box 129, Vancouver, WA 98666-0129, (206) 694-2462 or (800) 637-2256 FREE.
Larson, Georgianna, and Judith Kahn. Special Needs/Special Solutions: How to Get Quality Care for a Child with Special Health Needs. St. Paul: Life Line Press, 1991.
Neville, Kathy. Strategic Insurance Negotiation: An Introduction to Basic Skills for Families and Community Mental Health Workers (pamphlet). To order, contact: CAPP/NPRC Project, Federation for Children with Special Needs, 95 Berkeley Street, Suite 104, Boston, MA 02116. Single copies available at no cost.
Association of Maternal and Child Health Programs (AMCHP) 1220 19th Street, N.W., Suite 801 Washington, DC 20036 Phone: (202) 775-0436 Fax: (202) 775-0061
Call AMCHP to locate your state’s Children with Special Health Care Needs Program.
National Association of Insurance Commissioners (NAIC) Hall of States 444 North Capitol Street NW, Suite 701 Washington, DC 20001-1512 Phone: (202) 624-7790
Call NAIC to locate your state insurance commissioner, who can tell you about health insurance regulations in your state regarding bipolar disorders.
Association for the Care of Children’s Health ACCH Publications 19 Mantua Road Mt. Royal, NJ 08061 Phone: (609) 224-1742
This group offers a variety of publications on child healthcare, including guides to prepare a child for the hospital and many items for parents of special-needs children.
Mail order pharmacies
This is a consortium of Canadian pharmacies set up specifically to provide discounted prescriptions to US customers, although Canadians and others can use the service as well. Mail-order arrangements must be made over the Net, or directly through one of the consortium members (their addresses are available on the web site).
Continental Pharmacy PO Box 94863 Cleveland, OH 44101-4863 Phone: (216) 459-2010 or (800) 677-4323 FREE Fax: (216) 459-2004
Farmacia Rex S.R.L. Cordoba 2401 Esq. Azcuénaga 1120 Buenos Aires, Argentina Phone: (54-011) 4961-0338 Fax: (54-011) 4962-0153
Deeply discounted prices, and they mail anywhere.
Masters Marketing Company, Ltd.
Masters House No. 1 Marlborough Hill Harrow, Middlesex HA1 1TW England Phone: (011) 44-181-424-9400 Fax: (011) 4481 427 1994
Carries a limited selection of European pharmaceuticals, as well as a few American-made drugs, including Prozac.
1510 Harlan Drive Bellevue, NB 68005 Phone: (800) 485-7423 FREE Fax: (402) 682-9899 Email: firstname.lastname@example.org
This Austin, Texas-based chain provides Net-only mail-order service, and can compound medications as well.
You must have a prescription from an Australian doctor to use this mail-order service.
Stadtlanders Pharmacy has a stellar reputation in the disability community.
Victoria Apotheke (Victoria Pharmacy) Bahnhofstrasse 71 Postfach CH-8021 Zurich, Switzerland Phone: (01) 211-2432 (Europe) or (011) 411-211-24 32 (US) Fax: (01) 221-2322 (Europe) or (011) 411-221-2322 (US) Email: email@example.com