Resource’S # 1

“United States”

Depression and Related Affective Disorders Association (DRADA) Meyer 3-181, 600 North Wolfe Street Baltimore, MD 21287-7381 Phone: (410) 955-4647

The Child and Adolescent Bipolar Foundation (CABF) ll87 Wilmette Avenue, #33l Wilmette, IL 6009l Phone: (847) 256-8525 Fax: (847) 920-9310 Email:cabf@bpkids.org

A parent-led group providing education, support, and advocacy for children, adolescents, families and professionals.

Federation of Families for Children’s Mental Health 1021 Prince Street Alexandria, VA 22314-2971 Phone: (703) 684-7710 Fax: (703) 836-1040 Email:ffcmh@ffcmh.org

A group for families, especially low-income families, who are caring for a child with a mental illness.

National Alliance for the Mentally Ill (NAMI) Colonial Place Three 2107 Wilson Blvd. – Suite 300 Arlington, VA 22201-3042 Phone: (703) 524-7600 or (800) 950-NAMI (Helpline) Fax: (703) 524-9094 TDD: (703) 516-7227

NAMI is the largest organization for mentally ill people and their families in the US. It has state and local chapters around the country, sponsors legislation, advocates for mentally ill people, and provides excellent information via its web site and publications.

National Depressive and Manic-Depressive Association 730 N. Franklin Street, Suite 501 Chicago, IL 60610-3526 Phone: (312) 642-0049 or (800) 826-3632 FREE Fax: (312) 642-7243

This support and advocacy group specifically for people with depression or bipolar depression has chapters throughout the US and an informative web site.

“Canada”

Canadian Mental Health Association Simon Fraser Branch #3-260 Twelfth Street New Westminster, BC Canada V3M 4H2 Phone: (604) 524-2821 Fax: (604) 524-2870 Email: cmha@radiant.net

Integrated Network of Disability Information and Education Email: info@indie.ca

Mood Disorders Association of British Columbia 2730 Commercial Drive, #201 Vancouver, BC

Canada V5N 5PN Phone: (604) 873-0103 Fax: (604) 873-3095 Email: mda@lynx.bc.ca

“United Kingdom”

Glasgow Association for Mental Health Melrose House, First Floor

15/23 Cadogan Street Glasgow, G2 6QQ Phone: (0141) 204 2270 Fax: (0141) 204 2770 Email: GAMH@colloquium.co.uk

Manic Depression Fellowship 8-10 High Street

Kingston-upon-Thames Surrey KT1 1EY UK Phone: (0181) 974 6550 Email: mdfgl@mdfglmhmip.u-net.com

This organization has regional offices in Wales, Greater London, and Manchester, as well as 125 local groups throughout the UK. It provides support, advice, and information for people with manic depression, their families, friends, and carers.

Mental Health Foundation 20/21 Cornwall Terrace

London NW1 4QL Phone: 0207 535 7400 Fax: 0207 535 7474 Email: mhf@mentalhealth.org.uk

National Alliance of the Relatives of the Mentally Ill (NARMI) Tydehams Oaks Tydehams, Newbury

Berks RG14 6JT Phone: (01635) 551923

National Disability Council Caxton House, Level 4A Tothill Street London SW1H 9NA Phone: 0207 273 5636 Fax: 0207 273 5929

Minicom: 0207 273 5645 Email: chairman.ndc@dfee.gov.uk

Northern Ireland Association for Mental Health Beacon House 80 University Street Belfast BT7 1HE Phone: 028 9032 8474

Fax: 028 9023 4940

SANE 1st Floor, Cityside House 40 Adler Street London E1 1EE Phone: (0171) 724 6520 (office) National Helpline: 0345 67 8000 (daily 2:00 pm to midnight)

SANE is a mental health charity which campaigns to improve attitudes and services for sufferers and their families.

UK Advocacy Network Volserve House 14-18 West Bar Green Sheffield S1 2DA Phone: (0114) 272 8171

Young Minds 102-108 Clerkenwell Road, 2nd Floor London EC1M 5SA

Phone: (0171) 336 8445 (office) or (0800) 018 2138 FREE (Parents Hotline) Fax: (0171) 336 8446 Email: enquiries@youngminds.org.uk

“Ireland”

AWARE 147 Phipsborough Road Dublin 7 Ireland

Phone: (01) 830 8449 or (0) 679 1711 (Helpline)

AWARE offers help by phone, sponsors support groups in 38 locations around Ireland, provides information and literature, does public advocacy, and supports research.

Mental Health Association of Ireland Mensana House, 6 Adelaide Street Dun Laoghaire, County Dublin Ireland Phone: (01) 284 1166 Fax: (01) 284 1736 Email:info@mensana.org

“Australia”

Action Resource Network Inc. 266 Johnston Street Abbotsford, Victoria 3067 Phone: (03) 9416-3488 or (800) 808-126 Fax: (03) 9416-3484 TTY: (03) 9416-3491

Association of Relatives and Friends of the Mentally Ill (ARAFMI)

c/o Mental Health Resource Centre 1 Richmond Road Keswick, SA 5035 Phone: (08) 8221 5166 Fax: (08) 8221 5159

ARAFMI has chapters in most Australian states.

Disability Action Inc.

62 Henley Beach Road Mile End, SA 5031 Phone: (08) 8352 8599 or 1(800) 805 495 Fax: (08) 8354 0049 TTY: (08) 8352 8022 Email:email@disabilityaction.in-sa.com.au Contact: Brad or Jen

Mood Disorders Association (SA) Inc./Self-Help (MDP) Inc.

MHRC Building, 1 Richmond Road Keswick, SA 5035 Phone: (08) 8221-5170 Fax: (08) 8221-5159

MDA offers education and support services to those who may be suffering from depression and manic depression.

SANE Australia PO Box 226 South Melbourne, Victoria 3065

Phone: (61) 3 9682 5933 Fax: (61) 3 9682 5944 Email: sane@sane.org

“New Zealand”

Richmond Fellowship 249 Madras Street, Level 3 Christchurch, NZ

Phone: (64) 3 365-3211 Fax: (64) 3 365-3905 Email: national@richmond.org.nz

“Books and Publications”

Berger, Diane, et al. We Heard the Angels of Madness: A Family Guide to Coping with Manic Depression. New York: Quill, 1992.

Bipolar Disorders Letter

This is an online newsletter, mostly for professionals but of interest to parents as well. It summarizes recent studies on treatments. You’ll need the free program Acrobat Reader to look at it.

Bipolar Network News (newsletter). Stanley Foundation Bipolar Network, Bethesda, Maryland.

Fieve, Ronald R. Moodswing: Dr. Fieve on Depression (revised edition). New York: Bantam Books, 1997.

Guiness, David. Inside Out: A Guide to Self-Management of Manic Depression (booklet). The Manic Depression Fellowship (UK), 1998.

Halebsky, Mark. Surviving the Crisis of Depression and Bipolar Illness: Layperson’s Guide to Coping with Mental Illness Beyond the Time of Crisis and Outside the Hospital. Arvada, Colorado: Personal and Professional Growth Organization, 1997.

Jamison, Kay Redfield. An Unquiet Mind. New York: Random House, 1997. Dr. Jamison is one of the most prominent experts on bipolar disorders–and is herself a manic-depressive. This is her fascinating (and for worried parents, heartening) memoir.

Jamison, Kay Redfield. Touched with Fire: Manic-Depressive Illness and the Artistic Temperament. New York: Free Press, 1996.

Walsh, Mitzi. Bipolar Disorders: A Guide to Helping Children and Adolescents. Sebastopol: O’Reilly, 1999. A comprehensive book for parents that covers diagnosis, family life, medications, talk therapies and other interventions, insurance, and school. The book from which these resources are taken.

“Web sites”

Bipolar Disorders Center

For parents and caregivers of bipolar children and teens. Substantial excerpts from the the book Bipolar Disorders by Mitzi Walsh and other news and content.

BiPolar Children and Teens

This parent-run page features lots of supportive information and personal stories, including an incomplete list of support groups in the US and Canada for parents of children with mental illness, and links to an AOL chat room and several mailing lists.

BipolarKids list

This fabulous list for parents of bipolar children and teens is moderated by parent volunteers, and sponsored through the generosity of Active-Websites, owned by Steve Worden. It’s an excellent source of support and reliable information. To subscribe, see the requirements at their web site.

Bipolar (Mining Co.)

A collection of articles, links, and a Web chat group about bipolar disorders.

BPSO list Email: majordomo@ipl.co.uk

For parents, spouses, siblings, and friends of people with bipolar disorder. To subscribe, send email, and in the body of the message, write: subscribe bpso.

FyrenIyce

Information about bipolar disorders, and links to support and advocacy groups in Australia and elsewhere. There’s also a FyrenIyce email list.

Harbor of Refuge

Volunteer run organization that offers peer to peer support for people with bipolar disorder and those that care about them.

www.mgh.harvard.edu/” target=”_blank” rel=”nofollow”>Massachusetts General Hospital Neurology Forums

This site features discussion groups (live and bulletin board style) on almost every known neurological disorder, including bipolar disorders.

Moodswing.org

Home of the Bipolar FAQ (frequently asked questions list).

Pendulum Resources

You can find up-to-date information on bipolar disorders here, with a strong mental health consumer orientation.

WalkersWeb

WalkersWeb is the home of several mailing lists geared toward people with bipolar disorders or depression. It also has excellent links to mental health sites, its own informational files, and online chat groups.

“Related Conditions and Symptoms”

If your child has multiple diagnoses or simply shares symptoms with another condition, these books and online resources may help.

Hallowell, Edward. When You Worry About the Child You Love: Emotional and Learning Problems in Children. New York: Simon & Schuster, 1996. This book provides a good introduction to the whole spectrum of psychiatric, emotional, developmental, and learning disorders in young children. It’s very readable.

ADD/ADHD

Hallowell, Edward. Driven to Distraction: Recognizing and Coping with Attention Deficit Disorder from Childhood Through Adulthood. Reading, Massachusetts: Addison-Wesley, 1994. The classic book on ADD/ADHD.

Hallowell, Edward, and John Ratey. Answers to Distraction. New York: Bantam Books, 1996. A companion to Dr. Hallowell’s Driven to Distraction, this book provides behavior management and learning strategies to help the ADD/ADHD child.

ODD/Conduct disorders

Oppositional Defiant Disorder: What is it?

A Place for Us

This web site includes a parent message board, information, and links about conduct disorders, ODD, and related problems.

Eating disorders

Eating Disorders Association Resource Centre Phone: (07) 3352 6900 Email: eda.inc@uq.net.au

Most services are limited to Australia, but does contain a comprehensive list of related links, books and FAQ’s.

Eating Disorders Shared Awareness (EDSA)

This site includes links to US and Canadian support and informational sites on anorexia and bulimia.

Eating Disorders Association Wenson House, 1st Floor 103 Prince of Wales Road Norwich NR1 1DW UK Phone: (0160) 362-1414

Seasonal affective disorder

Rosenthal, Norman E., MD. Winter Blues. New York: The Guilford Press, 1993.

National Organization for Seasonal Affective Disorder (NOSAD) PO Box 40190 Washington, DC 20016 Phone: (301) 762-0768

SAD Homepage

Environmental Health and Light Research Institute 16057 Tampa Palms Boulevard, Suite 227 Tampa, FL 33647 Phone: (800) 544-4878 FREE

Light system vendors:

Apollo Light Systems Inc. 352 West 1060 South

Orem, UT 84058 Phone: (801) 226-2370

Hughes Lighting Technologies 34 Yacht Club Drive Lake Hopatcong, NJ 07849 Phone: (973) 663-1214 or (800) 544-4825 FREE Fax: (973) 663-3496

The SunBox Company

19217 Orbit Drive Gaithersburg, MD 20870 Phone: (301) 869-5980 or (800) 548-3968 FREE Email: sunbox@aol.com

Self-injurious behavior (SIB)

Strong, Marilee. A Bright Red Scream: Self-Mutilation and the Language of Pain. New York: Viking Press, 1998.

Levenkron, Steven. Cutting: Understanding and Overcoming Self-Mutilation. New York: W. W. Norton & Company, 1998.

Alderman, Tracy. The Scarred Soul: Understanding and Ending Self-Inflicted Violence. Oakland, California: New Harbinger Publications, 1997.

Bodies-Under-Siege mailing list Email: majordomo@majordomo.pobox.com

Bodies-Under-Siege is an online support group for people with self-injurious behavior. May not be appropriate for all teens with SIB, but some may find this therapeutic. To subscribe, send email, and in the body of the message, write: subscribe bus.

Secret Shame

Secret Shame is a web site about self-injury, offering information and support to people with SIB and their families.

Suicide prevention

The National Alliance for the Mentally Ill Phone: (703) 524-7600

NAMI is the largest support group for people with mental illness in the US. Its national information line or web site can help you find local resources right away.

National Suicide Prevention Hotline (US) Phone: (800) 999-9999 FREE

Call this number to get information about the closest suicide prevention hotline.

Suicide Awareness/Voices of Education (SA/VE)

Suicide Information and Education Centre (SEIC)

SEIC maintains a list of suicide prevention hotlines and services in the US and Canada.

Befrienders International Online

The Befrienders maintain a list of crisis and suicide counseling centers throughout the world.

Substance abuse

Adolescent Substance Abuse and Recovery Resources

Includes links to AA, NA, and many other groups that can help young people stop using drugs and alcohol.

Canadian Centre on Substance Abuse 75 Albert Street, Suite 300 Ottawa, ON K1P 5E7 Canada Phone: (613) 235-4048 Fax: (613) 235-8101

Drugline Ltd. 9A Brockley Cross

Brockley, London SE4 2AB UK Phone: (0181) 692-4975

“Special-Needs Parenting”

Bending the Rules: A Guide for Parents of Troubled Children. Michael McDonald Productions, 1996. Made by the Southern California chapter of the Tourette Syndrome Association, this is an excellent video on handling problem behaviors that are driven by brain dysfunction. It comes highly recommended by parents. Call (818) 881-3211 to order.

Bruun, Ruth Dowling, MD, et al. Problem Behaviors and Tourette’s Syndrome (pamphlet). Bayside, New York: Tourette Syndrome Association, 1993. Contact information: 42-40 Bell Boulevard, Bayside, NY 11361-2820, (718) 224-2999.

Budman, Cathy, MD, and Ruth Dowling Bruun, MD. Tourette Syndrome and Repeated Anger Generated Episodes (RAGE) (pamphlet). Bayside, New York: Tourette Syndrome Association, 1998.

Greene, Ross. The Explosive Child: A New Approach for Understanding and Parenting Easily Frustrated, “Chronically Inflexible” Children. New York: HarperCollins, 1998. The title says it all: This may be the best book ever on raising a child with bipolar disorder, or even just a “difficult” temperament. Full of parent-tested strategies for defusing behavior problems.

Greenspan, Stanley I., with Jacqueline Salmon. The Challenging Child. Reading, Massachusetts: Addison-Wesley, 1995. Dr. Greenspan explains why some kids have a “challenging” temperament, and offers excellent ideas for turning down the volume of outbursts, anxiety, and other behavior problems.

Greenspan, Stanley I., with Jacqueline Salmon. Playground Politics: Understanding the Emotional Life of Your School-Age Child. Reading, Massachusetts: Addison-Wesley, 1993. Help for parents with children who don’t fit in.

Greenspan, Stanley I., and Serena Wieder, with Robin Simons. The Child with Special Needs. Reading, Massachusetts: Addison-Wesley, 1998. This book concentrates on working with developmentally or emotionally challenged children from infancy through school age. Highly recommended, especially if your child has an additional diagnosis of PDD/autism, ADHD, etc.

Kurcinka, Mary Sheedy. Raising Your Spirited Child. New York: HarperPerennial, 1991. Covers handling sensory defensiveness and other contributors to “spirited” behavior.

Marsh, Diane T., Rex M. Dickens, and E. Fuller Torrey. How to Cope with Mental Illness in Your Family: A Self-Care Guide for Siblings, Offspring, and Parents. New York: Putnam Publishing Group, 1998.

Meyer, Donald, editor. Uncommon Fathers: Reflections on Raising a Child with a Disability. Rockville, Maryland: Woodbine House, 1995.

Naseef, Robert A. Special Children, Challenged Parents: The Struggles and Rewards of Raising a Child with a Disability. New York: Birch Lane Press, 1997.

Phelan, Thomas W. 1-2-3 Magic: Effective Discipline for Children 2-12. Glen Ellyn, Illinois: Child Management Inc., 1996. Phelan has devised a workable system for managing behavior without getting physical, especially for strong-willed kids. Many parents swear by it. Also available on tape.

Wollis, Rebecca, and Agnes Hatfield. When Someone You Love Has a Mental Illness: A Handbook for Family, Friends, and Caregivers. Los Angeles: J. P. Tarcher, 1992.

“Sibling Issues”

Meyer, Donald, and Patricia Vadasy. Living with a Brother or Sister with Special Needs. Seattle: University of Washington Press, 1996.

Meyer, Donald, editor. Views from Our Shoes: Growing up with a Brother or Sister with Special Needs. Rockville, Maryland: Woodbine House, 1997.

Sib Kids Club

A web site for kids who have a sibling with a disability.

SibShops/Sibling Support Project Children’s Hospital and Medical Center PO Box 5371, CL-09 Seattle, WA 98105 Phone: (206) 368-4911 Fax: (206) 368-4816

SibShops are special support groups for children dealing with a sibling’s disability. This site provides information on SibShops and related topics, and can help you find a SibShop program in your area.

“Special Education”

Anderson, Winifred, Stephen Chitwood, and Dierdre Hayden. Negotiating the Special Education Maze: A Guide for Parents and Teachers, 2nd ed. Rockville, Maryland: Woodbine House, 1990. Well-written and very complete. A new edition with information on the changes wrought in IDEA 97 was said to be in production at press time.

Cutler, Barbara Coyne. You, Your Child, and “Special” Education: A Guide to Making the System Work. Baltimore: Paul H. Brookes Publishing, 1993. A guide to fighting the system on your child’s behalf.

Dornbush, Marilyn P., and Sheryl K. Pruitt. Teaching the Tiger: A Handbook for Individuals Involved in the Education of Students With Attention Deficit Disorders, Tourette Syndrome, or Obsessive Compulsive Disorder. Duarte, California: Hope Press, 1995. This is a wonderful book, full of practical suggestions, organizing aids, and ideas for teachers, parents, and students. Very applicable to children with bipolar disorders, with or without ADD/ADHD.

Advocating for the Child

Maintained by the mother of neurologically challenged children, this site is an all-purpose guide to advocating for your child’s educational rights in the US. Information-rich, with great links and lots of inspiration.

The Special Ed Advocate/Wrightslaw

This is the place to find the actual text of special education laws, information on the latest court battles, and answers to your special education questions.

Special Education and Disabilities Resources

US information and links on special education law, assistive technology, and related topics.

“Healthcare and Insurance”

Beckett, Julie. Health Care Financing: A Guide for Families. To order, contact: the National Maternal and Child Health Resource Center, Law Building, University of Iowa, Iowa City, IA 52242, (319) 335-9073. This overview of the healthcare financing system includes advocacy strategies for families, and information about public health insurance in the US.

How to Get Quality Care for a Child with Special Health Needs: A Guide to Health Services and How to Pay for Them. To order, contact: The Disability Bookshop, PO Box 129, Vancouver, WA 98666-0129, (206) 694-2462 or (800) 637-2256 FREE.

Larson, Georgianna, and Judith Kahn. Special Needs/Special Solutions: How to Get Quality Care for a Child with Special Health Needs. St. Paul: Life Line Press, 1991.

Neville, Kathy. Strategic Insurance Negotiation: An Introduction to Basic Skills for Families and Community Mental Health Workers (pamphlet). To order, contact: CAPP/NPRC Project, Federation for Children with Special Needs, 95 Berkeley Street, Suite 104, Boston, MA 02116. Single copies available at no cost.

Association of Maternal and Child Health Programs (AMCHP) 1220 19th Street, N.W., Suite 801 Washington, DC 20036 Phone: (202) 775-0436 Fax: (202) 775-0061

Email: info@amchp.org

Call AMCHP to locate your state’s Children with Special Health Care Needs Program.

National Association of Insurance Commissioners (NAIC) Hall of States 444 North Capitol Street NW, Suite 701 Washington, DC 20001-1512 Phone: (202) 624-7790

Call NAIC to locate your state insurance commissioner, who can tell you about health insurance regulations in your state regarding bipolar disorders.

Association for the Care of Children’s Health ACCH Publications 19 Mantua Road Mt. Royal, NJ 08061 Phone: (609) 224-1742

This group offers a variety of publications on child healthcare, including guides to prepare a child for the hospital and many items for parents of special-needs children.

Mail order pharmacies

CanadaRx

This is a consortium of Canadian pharmacies set up specifically to provide discounted prescriptions to US customers, although Canadians and others can use the service as well. Mail-order arrangements must be made over the Net, or directly through one of the consortium members (their addresses are available on the web site).

Continental Pharmacy PO Box 94863 Cleveland, OH 44101-4863 Phone: (216) 459-2010 or (800) 677-4323 FREE Fax: (216) 459-2004

Farmacia Rex S.R.L. Cordoba 2401 Esq. Azcuénaga 1120 Buenos Aires, Argentina Phone: (54-011) 4961-0338 Fax: (54-011) 4962-0153

Deeply discounted prices, and they mail anywhere.

GlobalRx 4024 Carrington Lane Efland, NC 27243 Phone: (919) 304-4278 or (800) 526-6447 FREE Fax: (919) 304-4405 Email:info@globalrx.com

Masters Marketing Company, Ltd.

Masters House No. 1 Marlborough Hill Harrow, Middlesex HA1 1TW England Phone: (011) 44-181-424-9400 Fax: (011) 4481 427 1994

Carries a limited selection of European pharmaceuticals, as well as a few American-made drugs, including Prozac.

No Frills Pharmacy

1510 Harlan Drive Bellevue, NB 68005 Phone: (800) 485-7423 FREE Fax: (402) 682-9899 Email: refill@nofrillspharmacy.com

Peoples Pharmacy

This Austin, Texas-based chain provides Net-only mail-order service, and can compound medications as well.

Pharmacy Direct 3 Coal Street Silverwater, NSW 2128 Australia Phone: (02) 9648 8888 or (1300) 656 245 Fax: (02) 9648 8999 or (1300) 656 329 Email:pharmacy@pharmacydirect.com.au

You must have a prescription from an Australian doctor to use this mail-order service.

The Pharmacy Shop (Drugs By Mail) 5007 N. Central Phoenix, AZ 85012 Phone: (602) 274-9956 or (800) 775-6888 FREE Fax: (602) 241-0104 Email:sales@drugsbymail.com

Preferred Prescription Plan 2201 W. Sample Road, Bldg 9, Ste 1-A Pompano Beach, FL 33073 Phone: (954) 969-1230 or (800) 881-6325 FREE Fax: (800) 881-6990 Email:cust-svc@DrugPlace.com

Stadtlanders Pharmacy 600 Penn Center Boulevard Pittsburgh, PA 15235-5810 Phone: (800) 238-7828 FREE Email: enroll@stadtlander.com

Stadtlanders Pharmacy has a stellar reputation in the disability community.

Victoria Apotheke (Victoria Pharmacy) Bahnhofstrasse 71 Postfach CH-8021 Zurich, Switzerland Phone: (01) 211-2432 (Europe) or (011) 411-211-24 32 (US) Fax: (01) 221-2322 (Europe) or (011) 411-221-2322 (US) Email: victoriaapotheke@access.ch

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