Depression and Related Affective Disorders Association (DRADA) Meyer 3-181, 600 North Wolfe Street Baltimore, MD 21287-7381 Phone: (410) 955-4647
Federation of Families for Children’s Mental Health 1021 Prince Street Alexandria, VA 22314-2971 Phone: (703) 684-7710 Fax: (703) 836-1040 Email:firstname.lastname@example.org
A group for families, especially low-income families, who are caring for a child with a mental illness.
National Alliance for the Mentally Ill (NAMI) Colonial Place Three 2107 Wilson Blvd. – Suite 300 Arlington, VA 22201-3042 Phone: (703) 524-7600 or (800) 950-NAMI (Helpline) Fax: (703) 524-9094 TDD: (703) 516-7227
NAMI is the largest organization for mentally ill people and their families in the US. It has state and local chapters around the country, sponsors legislation, advocates for mentally ill people, and provides excellent information via its web site and publications.
National Depressive and Manic-Depressive Association 730 N. Franklin Street, Suite 501 Chicago, IL 60610-3526 Phone: (312) 642-0049 or (800) 826-3632 FREE Fax: (312) 642-7243
This support and advocacy group specifically for people with depression or bipolar depression has chapters throughout the US and an informative web site.
Mental Health Foundation 20/21 Cornwall Terrace
London NW1 4QL Phone: 0207 535 7400 Fax: 0207 535 7474 Email: email@example.com
National Alliance of the Relatives of the Mentally Ill (NARMI) Tydehams Oaks Tydehams, Newbury
Berks RG14 6JT Phone: (01635) 551923
Young Minds 102-108 Clerkenwell Road, 2nd Floor London EC1M 5SA
Phone: (0171) 336 8445 (office) or (0800) 018 2138 FREE (Parents Hotline) Fax: (0171) 336 8446 Email: firstname.lastname@example.org
“Books and Publications”
Berger, Diane, et al. We Heard the Angels of Madness: A Family Guide to Coping with Manic Depression. New York: Quill, 1992.
Bipolar Disorders Letter
This is an online newsletter, mostly for professionals but of interest to parents as well. It summarizes recent studies on treatments. You’ll need the free program Acrobat Reader to look at it.
Bipolar Network News (newsletter). Stanley Foundation Bipolar Network, Bethesda, Maryland.
Fieve, Ronald R. Moodswing: Dr. Fieve on Depression (revised edition). New York: Bantam Books, 1997.
Guiness, David. Inside Out: A Guide to Self-Management of Manic Depression (booklet). The Manic Depression Fellowship (UK), 1998.
Halebsky, Mark. Surviving the Crisis of Depression and Bipolar Illness: Layperson’s Guide to Coping with Mental Illness Beyond the Time of Crisis and Outside the Hospital. Arvada, Colorado: Personal and Professional Growth Organization, 1997.
Jamison, Kay Redfield. An Unquiet Mind. New York: Random House, 1997. Dr. Jamison is one of the most prominent experts on bipolar disorders–and is herself a manic-depressive. This is her fascinating (and for worried parents, heartening) memoir.
Jamison, Kay Redfield. Touched with Fire: Manic-Depressive Illness and the Artistic Temperament. New York: Free Press, 1996.
For parents and caregivers of bipolar children and teens. Substantial excerpts from the the book Bipolar Disorders by Mitzi Walsh and other news and content.
A collection of articles, links, and a Web chat group about bipolar disorders.
Volunteer run organization that offers peer to peer support for people with bipolar disorder and those that care about them.
http://www.mgh.harvard.edu/ Massachusetts General Hospital Neurology Forums
This site features discussion groups (live and bulletin board style) on almost every known neurological disorder, including bipolar disorders.
You can find up-to-date information on bipolar disorders here, with a strong mental health consumer orientation.
“Related Conditions and Symptoms”
If your child has multiple diagnoses or simply shares symptoms with another condition, these books and online resources may help.
Hallowell, Edward. When You Worry About the Child You Love: Emotional and Learning Problems in Children. New York: Simon & Schuster, 1996. This book provides a good introduction to the whole spectrum of psychiatric, emotional, developmental, and learning disorders in young children. It’s very readable.
Hallowell, Edward. Driven to Distraction: Recognizing and Coping with Attention Deficit Disorder from Childhood Through Adulthood. Reading, Massachusetts: Addison-Wesley, 1994. The classic book on ADD/ADHD.
Hallowell, Edward, and John Ratey. Answers to Distraction. New York: Bantam Books, 1996. A companion to Dr. Hallowell’s Driven to Distraction, this book provides behavior management and learning strategies to help the ADD/ADHD child.
This web site includes a parent message board, information, and links about conduct disorders, ODD, and related problems.
This site includes links to US and Canadian support and informational sites on anorexia and bulimia.
Eating Disorders Association Wenson House, 1st Floor 103 Prince of Wales Road Norwich NR1 1DW UK Phone: (0160) 362-1414
Seasonal affective disorder
Rosenthal, Norman E., MD. Winter Blues. New York: The Guilford Press, 1993.
National Organization for Seasonal Affective Disorder (NOSAD) PO Box 40190 Washington, DC 20016 Phone: (301) 762-0768
Environmental Health and Light Research Institute 16057 Tampa Palms Boulevard, Suite 227 Tampa, FL 33647 Phone: (800) 544-4878 FREE
Light system vendors:
Apollo Light Systems Inc. 352 West 1060 South
Orem, UT 84058 Phone: (801) 226-2370
19217 Orbit Drive Gaithersburg, MD 20870 Phone: (301) 869-5980 or (800) 548-3968 FREE Email: email@example.com
Self-injurious behavior (SIB)
Strong, Marilee. A Bright Red Scream: Self-Mutilation and the Language of Pain. New York: Viking Press, 1998.
Levenkron, Steven. Cutting: Understanding and Overcoming Self-Mutilation. New York: W. W. Norton & Company, 1998.
Alderman, Tracy. The Scarred Soul: Understanding and Ending Self-Inflicted Violence. Oakland, California: New Harbinger Publications, 1997.
Bending the Rules: A Guide for Parents of Troubled Children. Michael McDonald Productions, 1996. Made by the Southern California chapter of the Tourette Syndrome Association, this is an excellent video on handling problem behaviors that are driven by brain dysfunction. It comes highly recommended by parents. Call (818) 881-3211 to order.
Budman, Cathy, MD, and Ruth Dowling Bruun, MD. Tourette Syndrome and Repeated Anger Generated Episodes (RAGE) (pamphlet). Bayside, New York: Tourette Syndrome Association, 1998.
Greene, Ross. The Explosive Child: A New Approach for Understanding and Parenting Easily Frustrated, “Chronically Inflexible” Children. New York: HarperCollins, 1998. The title says it all: This may be the best book ever on raising a child with bipolar disorder, or even just a “difficult” temperament. Full of parent-tested strategies for defusing behavior problems.
Greenspan, Stanley I., with Jacqueline Salmon. The Challenging Child. Reading, Massachusetts: Addison-Wesley, 1995. Dr. Greenspan explains why some kids have a “challenging” temperament, and offers excellent ideas for turning down the volume of outbursts, anxiety, and other behavior problems.
Greenspan, Stanley I., with Jacqueline Salmon. Playground Politics: Understanding the Emotional Life of Your School-Age Child. Reading, Massachusetts: Addison-Wesley, 1993. Help for parents with children who don’t fit in.
Greenspan, Stanley I., and Serena Wieder, with Robin Simons. The Child with Special Needs. Reading, Massachusetts: Addison-Wesley, 1998. This book concentrates on working with developmentally or emotionally challenged children from infancy through school age. Highly recommended, especially if your child has an additional diagnosis of PDD/autism, ADHD, etc.
Kurcinka, Mary Sheedy. Raising Your Spirited Child. New York: HarperPerennial, 1991. Covers handling sensory defensiveness and other contributors to “spirited” behavior.
Marsh, Diane T., Rex M. Dickens, and E. Fuller Torrey. How to Cope with Mental Illness in Your Family: A Self-Care Guide for Siblings, Offspring, and Parents. New York: Putnam Publishing Group, 1998.
Meyer, Donald, editor. Uncommon Fathers: Reflections on Raising a Child with a Disability. Rockville, Maryland: Woodbine House, 1995.
Naseef, Robert A. Special Children, Challenged Parents: The Struggles and Rewards of Raising a Child with a Disability. New York: Birch Lane Press, 1997.
Phelan, Thomas W. 1-2-3 Magic: Effective Discipline for Children 2-12. Glen Ellyn, Illinois: Child Management Inc., 1996. Phelan has devised a workable system for managing behavior without getting physical, especially for strong-willed kids. Many parents swear by it. Also available on tape.
Wollis, Rebecca, and Agnes Hatfield. When Someone You Love Has a Mental Illness: A Handbook for Family, Friends, and Caregivers. Los Angeles: J. P. Tarcher, 1992.
Meyer, Donald, and Patricia Vadasy. Living with a Brother or Sister with Special Needs. Seattle: University of Washington Press, 1996.
Meyer, Donald, editor. Views from Our Shoes: Growing up with a Brother or Sister with Special Needs. Rockville, Maryland: Woodbine House, 1997.
A web site for kids who have a sibling with a disability.
SibShops/Sibling Support Project Children’s Hospital and Medical Center PO Box 5371, CL-09 Seattle, WA 98105 Phone: (206) 368-4911 Fax: (206) 368-4816
SibShops are special support groups for children dealing with a sibling’s disability. This site provides information on SibShops and related topics, and can help you find a SibShop program in your area.
Anderson, Winifred, Stephen Chitwood, and Dierdre Hayden. Negotiating the Special Education Maze: A Guide for Parents and Teachers, 2nd ed. Rockville, Maryland: Woodbine House, 1990. Well-written and very complete. A new edition with information on the changes wrought in IDEA 97 was said to be in production at press time.
Cutler, Barbara Coyne. You, Your Child, and “Special” Education: A Guide to Making the System Work. Baltimore: Paul H. Brookes Publishing, 1993. A guide to fighting the system on your child’s behalf.
Dornbush, Marilyn P., and Sheryl K. Pruitt. Teaching the Tiger: A Handbook for Individuals Involved in the Education of Students With Attention Deficit Disorders, Tourette Syndrome, or Obsessive Compulsive Disorder. Duarte, California: Hope Press, 1995. This is a wonderful book, full of practical suggestions, organizing aids, and ideas for teachers, parents, and students. Very applicable to children with bipolar disorders, with or without ADD/ADHD.
US information and links on special education law, assistive technology, and related topics.
“Healthcare and Insurance”
Beckett, Julie. Health Care Financing: A Guide for Families. To order, contact: the National Maternal and Child Health Resource Center, Law Building, University of Iowa, Iowa City, IA 52242, (319) 335-9073. This overview of the healthcare financing system includes advocacy strategies for families, and information about public health insurance in the US.
How to Get Quality Care for a Child with Special Health Needs: A Guide to Health Services and How to Pay for Them. To order, contact: The Disability Bookshop, PO Box 129, Vancouver, WA 98666-0129, (206) 694-2462 or (800) 637-2256 FREE.
Larson, Georgianna, and Judith Kahn. Special Needs/Special Solutions: How to Get Quality Care for a Child with Special Health Needs. St. Paul: Life Line Press, 1991.
Neville, Kathy. Strategic Insurance Negotiation: An Introduction to Basic Skills for Families and Community Mental Health Workers (pamphlet). To order, contact: CAPP/NPRC Project, Federation for Children with Special Needs, 95 Berkeley Street, Suite 104, Boston, MA 02116. Single copies available at no cost.
Association for the Care of Children’s Health ACCH Publications 19 Mantua Road Mt. Royal, NJ 08061 Phone: (609) 224-1742
This group offers a variety of publications on child healthcare, including guides to prepare a child for the hospital and many items for parents of special-needs children.
Mail order pharmacies
This is a consortium of Canadian pharmacies set up specifically to provide discounted prescriptions to US customers, although Canadians and others can use the service as well. Mail-order arrangements must be made over the Net, or directly through one of the consortium members (their addresses are available on the web site).
Continental Pharmacy PO Box 94863 Cleveland, OH 44101-4863 Phone: (216) 459-2010 or (800) 677-4323 FREE Fax: (216) 459-2004
Masters Marketing Company, Ltd.
Masters House No. 1 Marlborough Hill Harrow, Middlesex HA1 1TW England Phone: (011) 44-181-424-9400 Fax: (011) 4481 427 1994
Carries a limited selection of European pharmaceuticals, as well as a few American-made drugs, including Prozac.
1510 Harlan Drive Bellevue, NB 68005 Phone: (800) 485-7423 FREE Fax: (402) 682-9899 Email: firstname.lastname@example.org
This Austin, Texas-based chain provides Net-only mail-order service, and can compound medications as well.
You must have a prescription from an Australian doctor to use this mail-order service.
Searchable, online index to hundreds of medical journals. Many articles are available in full, others as abstracts only.
Free interface for searching the MEDLINE medical database, which can help you find out about studies, medications, and more.
There are a number of books available that list side effects, cautions, and more regarding medications. The biggest and best is the Physicians Desk Reference (PDR), but its price is well out of the average parent’s league. You may be able to find a used but recent copy at a good price.
If your child is allergic to food dyes, or to corn, wheat, and other materials used as fillers in pills, you should consult directly with the manufacturer of any medications he takes.
The British National Formulary (BNF). British Medical Association and the Royal Pharmaceutical Society of Great Britain, 1998. The standard reference for prescribing and dispensing drugs in the UK, updated twice yearly.
Preston, John D., John H. O’Neal, and Mary C. Talaga. Consumer’s Guide to Psychiatric Drugs. Oakland, California: New Harbinger Publications, 1998.
Silverman, Harold M., editor. The Pill Book, 8th ed. New York: Bantam Books, 1998. A basic paperback guide to the most commonly used medications in the US.
Sullivan, Donald. The American Pharmaceutical Association’s Guide to Prescription Drugs. New York: Signet, 1998.
Wilens, Timothy E., MD. Straight Talk About Psychiatric Medications for Kids. New York: Guilford Press, 1998.
The DPD contains product specific information on drugs approved for use in Canada. The database is managed by the Therapeutic Products Programme and includes human, veterinary and disinfectant products.
Dr. Bob’s Psychopharmacology Tips
Excellent information on psychiatric drugs, including things like the MAOI dietary restrictions and common SSRI interactions.
Official US information on new drugs and generic versions of old drugs, FDA warnings and recalls, etc.
“Alternative Medicine Resources”
Balch, James F., MD, and Phyllis A. Balch, CNC. Prescription for Nutritional Healing. Garden City Park, New York: Avery Publishing, 1997.
Baumel, Syd. Dealing with Depression Naturally. New Canaan, Connecticut: Keats Publishing, 1995.
Elkins, Rita. Depression and Natural Medicine. Pleasant Grove, Utah: Woodland Publishing, 1995.
Murray, Michael T., ND. Natural Alternatives to Prozac. New York: William Morrow and Company, 1996.
Norden, Michael J., MD. Beyond Prozac. New York: HarperCollins, 1995.
Stoll, Andrew L., MD. Omega-3 Fatty Acid User Guide. 1998. Available from: Psychopharmacology Research Laboratory, McLean Hospital, 115 Mill Street, Belmont, MA 02478.
The Vitamin Connection 72 Main Street Burlington, VT 05401 Phone: (802) 846-2026 or (800) 760-3020 FREE
Fax: (802) 846-2027
PO Box 1799 Hammond, LA 70404-1799 Phone: (504) 345-6234 Fax: (504) 345-5744 Email: email@example.com Contact: Kelsey Short
Source for omega-3 fish oils.
Sometimes a child’s symptoms are so challenging that your local psychiatrist may want to seek the help of experts. These facilities are among the world’s best-known centers for treating bipolar disorders.
KidsPeace: The National Hospital for Kids in Crisis 5300 KidsPeace Drive Orefield, PA 18069-9101 Phone: (800) 334-4KID Email: firstname.lastname@example.org
Mood Disorders Clinic Children’s Hospital 300 Longwood Avenue Boston, MA 02115 Phone: (617) 355-6000
National Institutes of Mental Health (NIMH) Biological Psychiatry Branch Building 10, Room 3N212
9000 Rockville Pike Bethesda, MD 20892 Phone: (301) 496-6827 or (800) 4ll-l222 (Recruitment and Referral) Email: email@example.com
Stanford Bipolar Disorders Clinic 401 Quarry Road Stanford, CA 94305-5723
Phone: (650) 498-4689 Fax: (65) 723-2507 Email: firstname.lastname@example.org
The Stanley Center for the Innovative Treatment of Bipolar Disorders 3811 O’Hara Street, Suite 279 Pittsburgh, PA 15213 Phone: (412) 624-2476 or (800) 424-7657 FREE Fax: (412) 624-0493
This is a multi-center research effort, including the Stanley Foundation Center at Johns Hopkins University, NIMH, and several other institutions.
University of Texas Southwestern Bipolar and Research Program 8267 Elmbrook Drive, Suite 250 Dallas, TX 75247 Phone: (214) 689-3765 Fax: (214) 689-3751 Email: email@example.com Contact: Mary Ann Westlake
This is a consortium of university medical schools and other research organizations concentrating on depression, bipolar disorders, and anxiety disorders. Their web site can link you with a CANMAT center near you, and also provides information about diagnosis and treatment options.
Division of Mental Health and Developmental Disabilities 350 Main Street, Room 217
PO Box 110620 Juneau, AK 99811-0620 Phone: (907) 465-3370 or (800) 465-4828 FREE Fax: (907) 465-2668 TDD: (907) 465-2225Email: Director@health.state.ak.us
Department of Human Services Division of Mental Health 4313 West Markham Little Rock, AR 72205 Phone: (501) 686-9164 TTD: (501) 686-9176 Fax: (501) 686-9182
Department of Health and Rehabilitative Services 1311 Winewood Boulevard Building 5, Room 215 Tallahassee, FL 32301 Phone: (904) 488-4257
Department of Health and Welfare 450 W. State Street Boise, ID 83720-0036 Phone: (208) 334-5500
Department of Mental Health and Developmental Disabilities
402 Stratten Office Building Springfield, IL 62706 Phone: (217) 782-7395
Division of Mental Health Family and Social Services Administration 402 W. Washington W353 Indianapolis, IN 46204
Phone: (317) 232-7841 TDD: (317) 232-7844 Fax: (317) 233-3472
Child & Adolescent Mental Health Programs 506 N. State Office Building Topeka, KS 66612 Phone: (913) 296-1808
Department of Mental Health and Mental Retardation Services 100 Fair Oaks Lane, 4th Flr.
Frankfort, KY 40621 Phone: (502) 564-7610
Department of Health and Human Resources PO Box 4049 655 N. 5th Street Baton Rouge, LA 70821 Phone: (504) 342-2548
Department of Health and Mental Hygiene
201 W. Preston Street O’Connor Building, 4th Floor Baltimore, MD 21201 Phone: (410) 767-6860 TDD: (800) 735-2258 FREE
25 Staniford Street Boston, MA 02214 Phone: (617) 727-5600 Fax: (617) 727-4350
Minnesota Children with Special Health Needs 717 Delaware Street SE PO Box 9441 Minneapolis, MN 55440-9441 Phone: (612) 676-5150 or (800) 728-5420 FREE Fax: (612) 676-5442
Nebraska Health and Human Services Office of Community Mental Health PO Box 95007 Lincoln, NE 68509 Phone: (402) 471-2330 www.hhs.state.ne.us
Division of Mental Health c/o Department of Health and Human Services State Office Park South 105 Pleasant Street Concord, NH 03301 Phone: (603) 271-5065
“Services for Children with Special Health Care Needs”
New Jersey Department of Health and Senior Services PO Box 364 Trenton, NJ 08625 Phone: (609) 984-0755
Human Services Department 1190 S. St. Francis Drive
P.O. Box 2348 Santa Fe, NM 87504 Phone: (505) 827-7750 or (800) 432-6217 FREE TDD: (800) 609-4TDD Email: firstname.lastname@example.org
Division of Mental Health Department of Health and Human Services Albemarle Building
325 N. Salisbury St. Raleigh, NC 27603 Phone: (919) 733-7011 Fax: 919-733-9455
Department of Human Services State Capitol Building 600 E. Boulevard Avenue, Dept 325
Bismarck, ND 58505 Phone: (701) 328-2310 or (800) 472-2622 FREE TTY: (800) 366-6888 Fax: (701) 328-2359 Email: email@example.com
1200 NE 13th Street PO Box 53277 Oklahoma City, OK 73152-3277 Phone: (405) 522-3908 or (800) 522-9054 FREE (Hotline)
Office of Mental Health Services Department of Human Resources 2575 Bittern Street NE
Salem, OR 97309-0740 Phone: (503) 975-9700 Fax: (503) 373-7327
State Division of Mental Health Department of Human Services 120 N. 200 W., Room 415 Salt Lake City, UT 84145
Phone: (801) 538-4270
Department of Developmental and Mental Health Services 103 S. Main Street Weeks Building Waterbury, VT 05671-1601 Phone: (802) 241-2609
Department of Mental Health, Mental Retardation, and Substance Abuse Services PO Box 1797 Richmond, VA 23218 Phone: (804) 786-3921 or (800) 451-5544 FREE TDD: (804) 371-8977 Fax (804) 371-6638
Mental Health Division
Health and Rehabilitative Services Administration PO Box 1788, OB-42C Olympia, WA 98504 Phone: (800) 446-0259 FREE
Manitoba Health Legislative Building Winnipeg, MB R3C 0V8 Phone: (204) 786-7111 or (877) 218-0102 FREE
Newfoundland and Labrador
Newfoundland Department of Health and Community Services Division of Family and Rehabilitative Services
Confederation Building, West Block PO Box 8700 St. John’s, NF A1B 4J6 Phone: (709) 729-5153 Fax: (709) 729-0583
Nova Scotia Department of Health PO Box 488
Halifax:, NS B3J 2R8 Phone: (902) 424-5886 or (800) 565-3611 FREE
Prince Edward Island
Prince Edward Island Health and Social Services Second Floor, Jones Building 11 Kent Street PO Box 2000
Charlottetown, PE C1A 7N8 Phone: (902) 368-4900 Fax: (902) 368-4969
Quebec Ministére de la Santé et Services Sociaux 1075 Chemin Sainte-Foy, R.C. Québec, QC G1S 2M1
Phone: (418) 643-3380 or (800) 707-3380 FREE Fax: (418) 644-4574
Saskatchewan Health T.C. Douglas Building 3475 Albert Street Regina, SK S4S 6X6 Phone: (306) 787-3475
Fax: (306) 787-3761
Kells, County Meath (046) 40341
Northern Territory Health Services PO Box 40596
Casuarina, NT 0811 Phone: (08) 8999-2400 Fax: (08) 8999-2700
Commonwealth Department of Health and Family Services 340 Adelaide Brisbane, Queensland Phone: (07) 3360-2555
Commonwealth Department of Health and Family Services 55 Currie Street Adelaide, SA 5000 Phone: (08) 8237-6111 Fax: (08) 8237-8000
Commonwealth Department of Health and Community Services Child and Family Services
4 Farley Street Glenorchy, Tasmania Phone: (03) 6233-2921
“Department of Health and Family Services”
Disability Programs Casselden Place 2 Lonsdale Street GPO Box 9848
Melbourne, Victoria 3001 (03) 9285-8888
Department of Health and Family Services Central Park, 12th Floor 152 St. George Terrace Perth, WA 6000 Phone: (08) 9346-5111 or (800) 198-008
Fax: (08) 9346-5222
New Zealand Ministry of Health 133 Molesworth Street PO Box 5013 Wellington, NZ Phone: (04) 496-2000 Fax: (04) 496-2340
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